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A Better Day

Today is Saturday, and we are at the Children's Hospital in Seattle, room 4013, and getting settled in to the hospital where we will likely be for several weeks.

Yesterday was a surreal whirlwind. We went from having a healthy but underweight baby to having a baby with a congenital heart defect in a very short time. Then we went from Fairbanks, to Anchorage, and to Seattle in less than 24 hours.

Today has been a much better day. Stephanie flew from Fairbanks to Seattle this morning and actually arrived before Brian and Sarah, who flew on a medivac from Anchorage. It is so good for us to be together again. It is hard to face this kind of situation alone, even for a day or two. Now we are together and more prepared to face whatever lies ahead. We have each other for comfort and support.

We met with one cardiologist today. He said while it may feel like an urgent situation after yesterday, it's actually not. The defect would certainly be fatal without surgery, but it does not have to be done today. It will most likely be done early this week, but we don't know when. The cardiac team will meet on Tuesday to discuss her surgery (after the long weekend) and we'll know what the procedure will involve. For now, Sarah is stable, and being monitored carefully. She is being fed continuously through an NG tube, and has been taken off the oxygen. Not having the oxygen tube has made her much more comfortable.. 

We have had tremendous support from so many of you. 

Jan arrived last night at 2AM and is now with Jacob, Toby, and Jamiee. Since we don’t know for sure how long this adventure will last, we are grateful that she has a flexible schedule. THANK YOU JAN!! We are often amazed at how she has just fit right into the family in a way that feels like she's always been here.

Dallas friends, Barry and Kim, have put us in contact with some friends of theirs who live here in Seattle. These friends have already reached out to us with kind and sincere offers for whatever help we might need. We appreciate it all.

Stephanie’s sisters have started making plans to come up. They're willing to go to Fairbanks to help Jan with the boys or to come here and support us. We’re not sure where they're needed the most right now, but we appreciate the offer. Each of our parents have also offered to come when and where they are needed, but we're still trying to figure out what kind of help we need.

We're also incredibly thankful for First Presbyterian of Fairbanks. We actually just attended the membership class last Sunday, so we're especially surprised and thankful for their support. In addition to the many prayers, they provided my (Stephanie’s) ticket to travel here to Seattle, meals for the family in Fairbanks while we are gone right now, and I was wonderfully surprised at the airport by a former member meeting me to take me to the hospital. It's hard to be on the receiving end of so much generosity, and they are really going above and beyond the call of welcoming new members. Thank you First Prez!                    

I (Stephanie) also received a surprise call from my dear, dear friend Rachel. She bought a ticket this morning for Seattle and called to say that she was on her way. I am so thankful for that and can't wait to see he

We wish we had something other than thank you to say in response to all of the calls, emails, and offers for help we have received. We are so blessed to have such wonderful family and friends. We are also so blessed to have the love of Christ. This is a REALLY hard experience - something that I think parents never really think could happen to them. It's comforting to know that God has been so consistent in his love and his provision for us.

We will continue to send out updates as things change and Brian is also posting to the website, so feel free to go there for more stories and photos. He got a few yesterday of the jet taking them to Anchorage!

Much love to you all.

Brian, Stephanie and Sarah

 

Posted on Saturday, August 30, 2008 at 06:01PM by Registered CommenterBrian Rozell in | Comments7 Comments

Reader Comments (7)

Hey Guys, Mel has been keeping me posted on little Sarah, I just want you to know that we are praying for her...we go to church with some amazing people as well, as know first hand what their support means in these kind of situations...on a side note, I have been forwarding Mels email to our sunday school class, and we are praying for Sarah! God is so amazing, the fact that little Sarah's whole never closed is a miracle in and or itself...I know that he will take care of Sarah,
Lord, I just pray that you give Brian and Stephanie the support and strength they will need in the weeks to come, I thank you for an amazing support system that you have provided them with...Please comfort Sarah Lord and keep her painfree and comfy...You are so gracious and mighty...in your name we pray...AMEN
I am glad that the three of you are together now.
Our church is praying for you and Sarah.
Your little family means so much to me. Stephanie, I am here...if you need anything! I mean ANYTHING! I can be on a plane - or will do whatever you need/want to help out and make things easier for you. I wish your boys knew me better than just the visits each time you were in town. I would just fly up there and take care of them so Jan could be with you.

I love you guys...you are being prayed for mightily!
August 30, 2008 | Unregistered CommenterDayna
Thank you for taking the time to share this update! I am so relieved to know that you are all together and that you are receiving the care and support you need right now. Our continued thoughts and prayers are with you all!
August 30, 2008 | Unregistered CommenterRachel
You are in my and my family's prayers. I forwarded your emails to Shauna, who lives in Bellingham, just outside of Seattle, and gave her the only cell number I have for you. She's planning on coming into Seattle on Monday. I am planning to send a care package to the boys and Jamiee. I'll have the kids pick out some things they might like, but please let me know if you can think of anything in particular that they need. I know you guys are probably really stressed and tired of talking to people and answering questions, so I'm not going to bother you with phone calls. But know that I'm here if you need anything and wish I could be there with you and for you. Love you lots!
August 30, 2008 | Unregistered CommenterLeigh
glad that Sarah is stable and in good hands and God answer our prayers with all the doctors /nurses available to monitor her until further steps taken.
i am sure the boys and Jamie will be alright with Jan in there watching while you are with Sarah.
Thank God for computer that we can keep in touch even though we are far apart and get a quick update on things.i am also glad that Stephanie's friend,Gov.Sarah Palin get elected to be McCain vice president
but of course our main thoughts are with you and the family.hope you will get some rest,love you all
August 30, 2008 | Unregistered Commenterdanny kwee
Brian and Stephanie,
I am so glad you have a few days to digest everything that's happening to little Sarah, formulate questions, and hopefully hold your dear little munchkin here and there?! Thank you for the updates, our computer is hardly left unattended as we wait to see how she is. But try to get some rest for yourselves these next few days, too. Say the word, and I'll be there. I just want to hug you both. That's a good enough reason to fly to Seattle, isn't it? Every time I get that urge, I give an extra kiss to Alex or Elaina.

Love you,
Carissa
August 30, 2008 | Unregistered CommenterCarissa
As a fellow Alaskan, I have been reading your blog for several months now. Although I dont know you, I just wanted to take the time to reach out and wish you and your family the best in your time of need. It's refreshing to hear how much people have stepped up to help you, in particular the presbyterian church (I have attended a Presbyterian church in Ohio my entire life). I hope that everything goes well for you and your little one. I'm glad that your faith is strong, let it be your guide.
August 30, 2008 | Unregistered Commenteralisha

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